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susie

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  1. With my daughter, it took a while on the fluconazole before her hair began to fall out. Not only did it come out easily, but the hair itself (the new growth near the scalp) seemed very, very weak. Check out this reference talking about long term use of fluconazole and alopecia. http://www.ncbi.nlm.nih.gov/pubmed/7625624
  2. Hi Anna, My daughter had significant hair loss from fluconazole. Not sure if your son is even on it, just wanted to mention it in case. I had a friend in high school who picked out all of her eyelashes. It seems like if he's pulling constantly, then that could be the cause (but I don't know anything about trich.)
  3. My DD9 takes l-tryptophan at bedtime. It has been very helpful for her anxiety and worked well from day one.
  4. Ok, thank you so much! Now I have a place to start.
  5. We recently got Yasko results back for my daughter and she also has COMT +/+ mutations for both the v158m and h62h. She also is +/+ for MTHFR c677t and has VDR mutations as well. I have to admit that I have not implemented many new supplements based on these results because I'm completely overwhelmed by the whole thing. We've been doing biomed for 6 years and my daughter's list of supplements is a whole page long, so I'm no stranger to complicated protocols. How do you choose which from the list to use? There's no way we could ever afford the whole enchilada, much less have the time to swallow all of the stuff. How do you do it? I thought that we would be getting an individualized supplement list, but the suggested supplements for everyone is an entire page long, then there are the 4 pages that are based on the mutations. I know there are answers in those reports that will help us if I can only figure out what to do. My daughter's PANS symptoms are fairly mild now compared to a couple of years ago, but we just can't seem to get rid of the tics and anxiety.
  6. Could I get those names also? I live in the Seattle area.
  7. I wonder if it's a tic of sorts since it's not occuring at night. To me it seems possible that the urinary sphincter muscle could spasm/tic also.
  8. Hi Julia,

    My daughter did well on the alinia. Some tics that I haven't seen in a year returned, but her behavior seemed to improve quite a bit. The tics may have been because of a strep exposure though. I just noticed a couple of old messages from you dated in March that I didn't see. I'm not sure how I missed those.Sorry about that.I'm running out of characters.Hope your...

  9. Hi Susie:

    How did your daughter do on the Alinia?

    My son is starting to take it again for 28 days. Dr. said it is an abx, antiviral, etc. all kinds of things which makes it a good med. for treating several things.

    Hope you are all doing well!

    Julia

  10. Hi Susie: Was in Klinghardt's office today and saw Susan Marra an invited guest speaker at one of Dr. K Seminars on lyme being held at the Marriott. Interesting huh?

  11. Hi Susie:

    Just wondering how your dr. appts. are going? Just found another doctor in Issaquah that is interesting. He also uses the 'Marshal Protocol'. His name is Steven M. Hall, M.D. He has a very interesting website www.stevenmhallmd.com Have talked to him 3 tims now about other things. He treats chronic health problems.

    Hope treatment is moving along for...

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