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Wombat140

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  1. Incidentally, how do I tell if I'm a "5 drops only" person? The book mentiones that about 1% of people with Lyme disease are hypersensitive to all outside substances and can't tolerate more than 1-5 drops of a rememdy. How do I tell if I'm one of them? I was rather suspicious as I have a history pf bad reactions to things, so I started with 5 drops (echinacea), then as nothing mucn seems to be happening, IO went up to a full odse of 1 tsp, but there didn't seem to be any difference. I later went down to 5 drops again, because things had been rallly dire, but things contiuniued much the same i.e. bad. How do I know which is right? What is "being unable to tolerate higher doses" supposed to consist of?
  2. Hmm. I could really do with some advice, if anyone has any. The latest is: In desperation, on April 10th I started taking the milk thistle again - but I didn't get a headache and the OCD didn't budge. I'm still taking it but nothing's happening. What should I do? Can anyone think what's going on? If it was indeed that it did work the first time, why isn't it working now? I suppose it's possible that it wasd a delayed reaction to another thing, not the milk thistle at all. But then, I'm still taking all the other things I was taking at that point, plus a few new ones, so why the change? An intriguing thing is that the milk thistle seeds aren't meant to do anything for the Lyme disease directly; the point of them is to help with herx reactions caused by other things, by helping to get rid of the gunk released by killing off bacteria. So if it really was the milk thistle that helped, that seems to suggest that some of the other things WERE doins something. (The other things I was taking at the time were Echinacea angustifolia, selenium and green tea extract. I'm aware that these aren't usually considered first priority herbs, by the way. there are resons for that - my OCD won't let me take a lot of the "main" ones, so I'm just taking whatever relevant herbs IO can. And I haven't dared take any directly antibacterial ones yet because I'm in such a bad way I didn't dare take the risk of a herx.) Any help would be much appreciated. I really am despearate for help for help, and the milk thistle is the only thing that I've treid since I started with the herbal things in early March that does seem to have actually made things better! In general, it's just gone slowly downhill since Istarted on the herbal treatments.
  3. But if that does the opposite of what milk thistle does (at least, you seem to think taht milk thistle does the opposite of what I should be doing), then would that make my OCD worse? The trouble is, I'd sooner have migraines than OCD! Anyone else - is there anything else that might do the same job as mlik thistle without being it?
  4. PLEASE READ - Important: please read this posting before replying to anything I post: http://latitudes.org/forums/index.php?showtopic=24834#entry186170 I've been taking milk thistle - or trying to - as part of a Lyme disease protocol, or rather as a precatuin against the possible effects of a Lyme disease rotocal. I took it for a week and within a few days I started having headaches all the time, ending with what was unmistakably one of my old familiar migraines, feeling sick and everything, though I fell asleep before I got as far as actually being sick. I didn't take the milk thistle that evening (not becaude I was suspicious but jsut because I couldn't face taking it!) Headache had gone by nect day. I didn't start the milk thistle again, and the headache didn't come back. Since then, I've tried it twice, leaving a few days in between, and each time the headache has come back within a few hours. My question is, is this some kind of detoxification reaction and will go, or am I just allergic to milk thistle? I didn't think milk thistle was supposed to have a=an effct over such a short time anyway, I swa eome say that it took about a month for the liver enzmye readings to get back t narmol if they'd been up before you started taking it. The annyoing thing is that it did seem a bit better, OCD wise, while I was taking it. I'm not allericg to ragowrt pollen. I do have CBS +/-.
  5. For the information of anyone else: I found one! www.bristolbotanicals.co.uk They stock EVERYTHING (well, pretty close). Apparently people have asked them about this and they started stocking some of the herbs that had previously been missing, specially for that. Very good to deal with, too, quick and efficient and answer e-mail inquiries very fast.
  6. You're a star, LLM. You and Rowingmom both. I've e-mailed both of those people and hopefully they'll be able to tell me where they get their supplies! Good idea about Canada too, I wouldn't have thought of that.
  7. PLEASE READ - Important: please read this posting before replying to anything I post: http://latitudes.org/forums/index.php?showtopic=24834#entry186170 Hello, just wondering whether anyone happens to know a supplier for Buhner herbs in the UK or elsewhere in Europe? The book only lists American suppliers - some of them do ship to the UK but it looks like the shipping costs can be a bit steep and possibly slow as well, so it would be handy to be able to get them from closer to home. (The book suggests just doing a Web search for the names of herbs and seeing who's cheapest. I am certainly not doing that with herbs! I was reading only the other day about a woman who bought comfrey tea off a market stall and ended up in hospital, it turned out to be foxgloves.)
  8. Do the detox things make things worse before they get better?
  9. Thank you all for being so understanding! Yes, I'll definitely put a note on any new hreads, I was thinking of doing that. And thanks Sheila for editing those posts. What you say all makes a lot of sense. Don't know what I'd do without you! I've ordered the Buhner book too, you'd expect that to have something to say about it. I'll have something to discuss with my doctor now - hope he gets the point. By the way, I tested positive for something!!!! Or sort of positive. Positive on one Lyme disease test (Elispot) and negative on the other (Western Blot, I think, haven't got the results sheet handy at the moment - I do remember it had ten bands and only one showed anything), positive on Coxsackie virus, negative on the others. I don't know... is that maybe just normal and what anyone would randomly have and has nothing to do with anything? :-( maybe not, I hope. Can anyone comment?
  10. PS: In fact, LLM, could you remove the "calming inflammation" sentence in yours, too? It wouldn't wouldn't normally even be a problem, but I had such a catastrophic reaction to Ryan's posting that it's somehow got itself attached to, that particular example of it, got itself attached to he memory and is going off like a bomb every time I see it.
  11. PLEASE READ There's something I urgently need to ask you all before I can say anyhitng else. I have to ask you, when replying to my messages, please can you not use a particular word, at all? I can't say it myself, but if you look at this link: http://disq.us/url?url=http%3A%2F%2Fthe-roleplaying-scientists.wikia.com%2Fwiki%2FHere_to_Stay%3Azca3iXPaUc0XwY9BSb818hkQbnY&cuid=4046483 , it's the sixth word on the T-shirt - just after "Elixir". I know that's a rather silly and convoluted way of getting the message across; that's OCD for you! (If you're wondering, the webpage relates to a very silly role-playing/story-telling site that I've fallen for!) And please don't say it in reply to this message! (Also, don't bother asking me why that particular word is a problem, because I don't know!) I will post this on any more threads I post, too, just to be sure, I'm not relying on everyone on the forum seeing this one, that would be silly of me. I'm sorry, I know that this is something you're absolutely not supposed to do, but after what happened last time, I really don't think it's safe for me to use this forum any more otherwise, and I really don't think we can manage to work out what to do if I can't use it; it's become absolutely indispensable to us. PLEASE don't reply by saying it deliberately in the name of exposure therapy. You have no idea how violent my reactions to that are - especially so if I've just asked the person not to. Or maybe you do have an idea, in which case I don't need to ask you; I was just frightened in case somebody did. Believe me, I run across it accidentally often enough, and it doesn't help and the results aren't pretty!
  12. PLEASE READ There's something I urgently need to ask you all before I can say anyhitng else. I have to ask you, when replying to my messages, please can you not use a particular word, at all? It's because my OCD reacts disastrously to seeing that particular word. I can't say it myself, but if you look at this link: http://disq.us/url?url=http%3A%2F%2Fthe-roleplaying-scientists.wikia.com%2Fwiki%2FHere_to_Stay%3Azca3iXPaUc0XwY9BSb818hkQbnY&cuid=4046483 , it's the sixth word on the T-shirt - just after "Elixir". I know that's a rather silly and convoluted way of getting the message across; that's OCD for you! (If you're wondering, the webpage relates to a very silly role-playing/story-telling site that I've fallen for!) And please don't say it in reply to this message! (Also, don't bother asking me why that particular word is a problem, because I don't know!) Also, Ryan, would you mind editing your previous post, please, (just remove the whole of the bit about essential oils)? That way I can read my thread without ducking and diving. Please let me know when you have. Thanks. I will post this on any more threads I post, too, just to be sure, I'm not relying on everyone on the forum seeing this one, that would be silly of me. I'm sorry, I know that this is something you're absolutely not supposed to do, but after what happened last time, I really don't think it's safe for me to use this forum any more otherwise, and I really don't think we can manage to work out what to do if I can't use it; it's become absolutely indispensable to us. (No, my family can't do it for me, because reasons, take too long to explain.) PLEASE don't reply by saying it deliberately in the name of exposure therapy. You have no idea how violent my reactions to that are - especially so if I've just asked the person not to. Or maybe you do have an idea, in which case I don't need to ask you; I was just frightened in case somebody did. Believe me, I run across it accidentally often enough, and it doesn't help and the results aren't pretty! I almost forgot to say thanks people for the replies, they're helpful. Anyone else?
  13. I'm finally having tests done! Lyme disease and variosu other oddments. Waiting for the results to come back now. I'd like to have more idea about certain things before I speak to my doctor. The thing is, things are very bad at the moment, and I don't know at all what we would do if there was a "herx". What might make it less likely? I saw a thread recently where someone's child had been being treated fairly successfully with herbs but was put on a combination of antibiotics to get rid of the last bit and got so much worse that they had to go back to the herbs. Are herbs likely to be safer, herx-wise, than antibiotics? (That's assuming that our PANS doctor actually knows anything about herbs; I've no idea.) Is starting on a lower dose of antibiotics a good idea? Or with fewer different antibiotics at once rather than introducing several together? Any help welcome. Terrified.
  14. While waiting for tests to be done, my PANS doctor prescribed me various things that are supposed to boost the immune system (colostrum, Agaricus blazii, probiotic). After I'd been taking them for a week I was considerably worse so in desperation I stopped them again. (That was a few days ago. I couldn't say whether stopping them has helped or not.) What I'd like to know is, why would "boosting the immune system" be a good thing in someone who's suspetced of having an autoimmune condition? Surely that's the exact opposite of what you should be doing? I've heard of children with very bad and refractory cases of PANS actually being put on immunosuppressants with some success. My instinctive feeling, and my mother's too, is that it doesn't make any sense, but I don't know. Can any of you give me a bit more background on this? Heard any explanations, in either direction? I need to e-mail him soon about supplements so I'd like to have more idea what I'm talking about before I do.
  15. http://www.bbc.co.uk/news/health-38220610 Interesting. Not PANS, but might get them interested? Antibodies to NMDA receptors, that's the same thing that was involved in the "Brain on Fire" case, isn't it?