Hello everyone,
Reading this forum for over a year, but this is the first time I'm trying to share my case and maybe find a good advise or analysis.
My girl D is 7 years old. She is diagnosed with Lyme and Bartonella for 14 months, but we all understand the disease was there even 2-3 earlier. She's diagnosed and went thro 12 months of ABX and 3 Ivig treatments, none of them have improved her but kept her on a gentle status que. Her only symptom was motor tics, and very light vocal tics. And we thought we're handling the situation.
In the last few weeks sh'es under a nerve attack. Started with serious motor tics, full body, then she was hurt with a loss of knee reflex, and as of few hours ago she developed a super loud - somewhat chilling - scream tic.
We're both with an immunologist and in the last couple of weeks a neurologist who believes she has a neurological lyme where only parenteral ABX can do the work. However, I'm not sure my kid would agree to do an MRI, which is probably needed.
My Qs:
1) do you have a familiar case of tics only onset and a lyme that was attacking the nerves system only?
2) did you have any success in getting your kid to do an MRI? And if yes, how so?
3) did you try parenteral ABX that did much better than oral ones?
Super appreciative for any help. We're in a tough condition as a family.
Thank you!