Boycie

Hi, Yes, I have definitely experienced this - I have Tourette syndrome and have tried B6 on several occasions , each time my tics have got massively worse and then subsided after discontinuing. I was trying a generic/supermarket brand. Stuart

Hi, Was just wondering if anyone had any information on how untreated adult ADHD can affect Tourettes, i've tried searching the web and most of the info relates to how ADHD medications affect TS, not the condition itself. I have tried a lot of TS meds with no luck and have now cleaned up my diet considerably but with no real change. I've looked into the symptoms of ADHD and can recognise practically all of them in myself. I am 38 and was diagnosed with TS when I was 15, the ADHD side was never looked into because my tics were the obvious symptom and there was not much known about TS in the UK back then. Grateful for any info anyone can provide as my tics are driving me mad! Thanks Stuart

He is putting me forward to be considered for a trial of Deep Brain Stimulation here in the UK, it is an option that obviously scares me quite a bit but the impact that my tics are having now on every part of my life and the way they affect my home life with my wife , kids, work etc I am starting to feel that these are the options I have to consider. Thanks for the website address and thanks to you to RowingMom , i'll have a look.

Hi, This is my first post so thank you to anyone for taking the time to read and to anyone who chooses to reply, I am a 38yr old male from the UK with tourettes and possible Adult ADHD, I am very envious of the knowledge you guys seem to have and pass around, plus the open mindedness to other triggers/causes etc shown by some of your medical professionals, I think we are sadly still quite a bit behind you in the UK. Anyway, to my question. My tics seem to be getting worse as I get older and this has resulted in me having to take time off from work. My specialist has prescribed me Topiramate and I am up to 125mg per day at the moment with no real noticeable benefit from this drug and the possibility of a surgical procedure has been suggested. I have put a lot of weight on in the last couple of years and had decided to try a lo-carb diet to try and shift the bulk of it relatively quickly. I have only been on this lo-carb diet for 2 weeks and have noticed a considerable improvement in my tics, from reading other posts on these forums, could it be because I am eliminating sugar/gluten and some dairy whilst on this diet? I was wondering how long it takes to see the full effects/benefits of removing gluten/dairy from your diet with respect to tourettes (assuming gluten/dairy is a trigger), also this diet still permits me to eat cheese and cream so I guess from a dairy perspective I should be trying to remove these as well? I am finding the diet a bit of a trial to stick to already because of the limited food choices - but I am not willing to give up the sustained improvements I have seen in my tics. Grateful for any advice anyone can give Thanks Stuart.