IVIG & Antibiotics
Posted 20 July 2010 - 07:19 PM
Posted 20 July 2010 - 07:35 PM
Our son is currently 14 and about 110 lbs. Based on our own painful experience post-IVIG, I'd strongly recommend you ask for a higher dose of abx and stay on it for an extended period to be sure. (We've been on 1000 mg of XR twice daily for 10 months now... and it's the best 10 months our son has had in 3 years!)
Posted 20 July 2010 - 07:42 PM
-Peggy, mom to 19yo PANDAS daughter w/ onset probably in infancy. Manifests w/ severe autism symptoms and currently nonverbal.
Posted 20 July 2010 - 08:09 PM
My son has PANDAS and just did an IVIG @ 1.5grams per kilogram. In your opinion what is the right antibiotic to put your child on to prevent further strep and at what milligram. (Augmentin 500mg once a day or Penecillin VK @ 250mg twice a day)
It does seem that many parents find full-strength antibitics regardless of whether IVIG is added to the mix) to be much more effective than lower prophylactic doses.
Also, "bigger gun" antibiotics (eg. Azithromycin, Augmentin XR) definitely seem to be more clinically effective with our kids vs. pen or amoxicillin.
My dd (currently 62 pounds) has been on 250mg/day for over 2 years, although we are thinking of changing to Augmentin. She's had 2 IVIG's. The first in Aug. 09, the second in May 2010.
I also personally believe (just b/c it has a short half-life, and reports of kids getting strep on this forum on 1x daily dosing) that once a day amoxcillin or augmentin isn't a terrbly effective prophylaxis for PANDAS kids. As far as I am concerned, Azith. is the only effective once daily PANDAS antibiotic.
Re. pen...it's really important to give the pen every 12 hours. If you miss a dose your child is unprotected for several days. That info. was from a Swedo lecture.
Edited by EAMom, 20 July 2010 - 08:13 PM.
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