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New eBook: Your Child Has Changed; Should You Consider PANDAS?


Have you seen the ACN Latitudes PANDAS eBookOur helpful book is a 37-page primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need. Learn more

 




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voice fluctuation


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17 replies to this topic

#1 mkur

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Posted 19 July 2010 - 04:25 PM

My son has trouble regulating the tone, volume and pitch of his voice.

Is this common for PANDAS? Thank you for your input.


#2 EmersonAilidh

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Posted 19 July 2010 - 04:41 PM

My son has trouble regulating the tone, volume and pitch of his voice.

Is this common for PANDAS? Thank you for your input.


I don't know if it's common but it's definitely a problem for me!
Every now & then something comes out totally high pitched & squeaky & I'm just like "Woah, was that me???" or I don't even realize that I'm practically shouting when spending time with friends until they tell me to quiet down.
15 years old living with P.A.N.D.A.S. in DFW Texas. Suspected age of onset ~ 4 (1999). Suspected age chronic ~ 10 (2006). Tick bite in 2006, tested positive for Lyme on August 2010. Dystonia ~ 2007.

#3 tantrums

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Posted 19 July 2010 - 09:14 PM

It's definitely a problem for my son. And yes, I do believe it is a common symptom :(

#4 bgbarnes

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Posted 20 July 2010 - 06:18 AM

My son has trouble regulating the tone, volume and pitch of his voice.

Is this common for PANDAS? Thank you for your input.

If I had a dollar for every time I had to tell my son to stop yelling I would be VERY VERY VERY wealthy :lol:. I think with him it is more than a "boy" thing b/c it varies and is definitely louder at different times.
Brandy

#5 amyslp

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Posted 20 July 2010 - 06:36 AM

From a speech therapist's perspective this is very interesting to me. When thinking of other disorders related to the basal gangia & Dopamine, for example Parkinson's Disease, one of the hallmarks & initial symptoms is voice changes-particularly reduced volume. I would love to see how many kids have these voice changes (particularly low volume), although I think it's probably hard to differentiate it from changes in children's voices throughout childhood, which happens as a result of normal changes in the vocal tract as they grow & mature.

My daughter asked me a few weeks ago if she sounded like a boy. I thought the question was so odd & asked if someone told her that. She said that they hadn't but that she sounds different. I could not perceive a difference but maybe she's on to something.


Amy
Allison, age 8, dx. PANDAS at age 4 after 6 months of chronic strep infection and EBV
Jillian, age 5, dx. PANDAS at age 3 initially after impetigo.
Myself, my sisters, my father and my paternal grandmother all with symtoms consistent with PANDAS/OCD

#6 worried_dad

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Posted 20 July 2010 - 01:07 PM

Interesting indeed! Our son developed a very raspy, gravelly voice when PANDAS hit. We were never sure if it had something to do with the disorder or was just "pre-puberty" voice changes. Heres' an older thread on this topic:

http://www.latitudes...?showtopic=5711


From a speech therapist's perspective this is very interesting to me. When thinking of other disorders related to the basal gangia & Dopamine, for example Parkinson's Disease, one of the hallmarks & initial symptoms is voice changes-particularly reduced volume. I would love to see how many kids have these voice changes (particularly low volume), although I think it's probably hard to differentiate it from changes in children's voices throughout childhood, which happens as a result of normal changes in the vocal tract as they grow & mature.

My daughter asked me a few weeks ago if she sounded like a boy. I thought the question was so odd & asked if someone told her that. She said that they hadn't but that she sounds different. I could not perceive a difference but maybe she's on to something.


Amy



#7 mary m

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Posted 20 July 2010 - 01:14 PM

We have definitely experienced vocal variations while in an exacerbation. The face swells, the voice changes (sometimes it is nearly unrecognizable in its pitch, presentation and cadence). And I continue to be amazed at how she can scream for so long and yet have no sore throat or hoarseness after the screaming event. It is a very physiological event for our dd12.
Mary
from Michigan

#8 scorpio1

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Posted 08 January 2011 - 06:27 PM

My 8 year old son developed PANDAS during the summer of 2010. He was given a penicillin shot by his pediatrician and has been taking oral penicillin from an infectious disease specialist in New Orleans for four months. A heart murmur was also discovered and we were told that it is typical of PANDAS patients. My son's tics seem better, but his voice has been raspy for two weeks now. Two days ago he became ill with 102 degree fever and a severe sore throat, which could be the cause. I would also like to add that until he started his antibiotic, his voice would fade to very quiet while reading. Within a couple of weeks of being on the penicillin, his volume control improved.

Edited by scorpio1, 11 January 2011 - 01:42 PM.


#9 sarahjane

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Posted 08 January 2011 - 08:18 PM

Our son had a high pitch voice that he'll use at times. I've finally figured out that it's a marker that PANDAS is at play. So weird how things manifest and how hard it can be to connect the dots. Grrr.

#10 tampicc

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Posted 08 January 2011 - 08:45 PM

My 5 year old boy gets a type of LOUD, insistent talking, and tends toward monologues with his PANDAS symptoms. We know we are seeing some PANDAS when that returns, and we usually see a few mild tics resurface with it.

#11 momwithocdson

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Posted 08 January 2011 - 09:06 PM

What we see when he's ramped up via PANDAS is increased volume. We're constantly having to remind him that we're "right here" and he doesn't have to shout. I think it's the same adrenaline push that the "fight or flight" induces when the PANDAS anxiety is pumped up.

Nancy
Mom of PANDAS DS17, Senior in High School - Planning for College


#12 dabel

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Posted 08 January 2011 - 09:25 PM

I only see this in one of my three PANDAS boys. He gets very loud and the fluency definitely changes for the worse.

#13 johnsmom

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Posted 08 January 2011 - 10:50 PM

Ds' voice fluctuation is never consistent. Right now it's better but at times can be very annoying and now he is picking up on the frustrated look on my face and then tries to repeat it in a correct tone. It disappeared after the prednisone burst and IVIG of course.

#14 adkmom

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Posted 09 January 2011 - 09:29 AM

Our son is usually very LOUD! Can't seem to regulate the volume. I asked Dr. B about this and he thought it was tied more to being hyperactive during the Pandas episodes.
Visit us at Children's Lyme Disease Network!

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Mom to DS4 with Lyme/Pandas

#15 phillypa

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Posted 09 January 2011 - 09:38 AM

My son talks in a low gruff raspy voice. It didn't start out the way. It started that he would whisper.




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