Anyone dealing with issues on changing clothes
Posted 24 October 2009 - 11:23 AM
I finally settled on letting him change into clean clothes the night before and he sleeps in them.
I am so embarrassed to admit he only takes a shower once a week. It is just too much trauma to fight it everyday.
I scour the stores finding the softest t shirts, with no tags, socks with no seams and currently he will only wear the long basketball type shorts but they have to have pockets.
I have accepted a "new normal" regarding this. I pick my battles!
I just wanted to vent and see if others are experiencing this. His first diagnosis was sensory integration dysfunction. I am wondering if it has always been the PANDAS.
Posted 24 October 2009 - 11:53 AM
Even before we saw any real episodes, our dd had the sock thing. It started as having to turn socks inside out cos of the seams. Then we had to move onto socks with no seams (socks for diabetics) and we also had "naked baby" where she would be clothesless in the house, just her nappy... always taking her clothes off when she came in.. this all started maybe as early as 2 yrs old. At the time it just seemed cute and quirky.
When she had her 1st episode that we noticed, the clothes thing got really difficult.. no socks and only a couple of items of clothing she would wear. I somewhat gauge her status by how she is with clothes....at the moment she wears anything and leaves clothes and shoes on when at home.. so I know we're in a good place at the moment :-)
DS5 dx'd 2009 1 year after first symptoms also PITANDS
Posted 24 October 2009 - 11:56 AM
As for bathing, my son once went 2 weeks w/o bathing. He was only 5 so it's not like he smelled or anything, but the bath before that he was like a wild animal. I had to strip him, carry him screaming and kicking, then have my husband hold him while he stood and I bathed him. Luckily, that extreme adversion to the bath was only that one time. I figured if I gave him enough break between baths that time, he would perhaps forget that awful experience and not freak out again.
Posted 24 October 2009 - 11:59 AM
Posted 24 October 2009 - 12:00 PM
Sensory integration/defensiveness was definitely a huge part of episodes for us.. Loud noises too were a problem, flushing toilets especially. I imagine it's the increased dopamine that makes them super sensitive to external stimulae..?.....
DS5 dx'd 2009 1 year after first symptoms also PITANDS
Posted 24 October 2009 - 12:03 PM
He did hate having his head touched so it would make sense how having the clothes touch his head would be like nails on a chalkboard.
Posted 24 October 2009 - 12:22 PM
Interestingly, Sammy Maloney had these same symptoms (couldn't shower or brush teeth) per "Saving Sammy," and I noticed the same thing in one of the other recent threads that linked to another mom's online article about her son's PANDAS experience. Recall seeing others post about this, too. This seems to be a common pair of symptoms for PANDAS?
As far as clothes go: since this thing started, our son will only wear black clothes - shirts, pants, socks, shoes - and they have to fit exactly right or he won't wear them. But he does change his socks and shirt every night, which is a relief!
Posted 24 October 2009 - 12:34 PM
Poor kids, it must be terrible to be so scared of ordinary things in life.
-Peggy, mom to 19yo PANDAS daughter w/ onset probably in infancy. Manifests w/ severe autism symptoms and currently nonverbal.
Posted 24 October 2009 - 01:11 PM
Dut- like you I base my daughter's status on her clothing issues. We are in an ok place. She cannot wear anything, but does have many outfits she wears
She also hates the bath. Luckily she is tiny- so I just put her in. Once she is in- she enjoys playing in the water. Getting dried is stressfull for her.
She hates having her hair brushed, teeth brushed, etc. She is small, so I force it once per day. If she can yell at me- it seems to make her feel better (maybe that is her compulsion).
Although this was bad, I think being so little made it easy. I cannot imagine a 10 year old girl feeling this way
I certainly lowered my standards, and chose my battles.
Pandas certainly teaches you a lot about what is important in life
Posted 24 October 2009 - 01:43 PM
Posted 24 October 2009 - 02:56 PM
We often change clothes in the evening into what she will wear to school the next day and this sometimes helps encourage a bath (with epsom salt soak). This helps solve a lot of morning problems. I don't force showers or baths any more, I do work towards 2 a week but there are many weeks where theat doesn't happen. The summers are great because of all the swimming we do.
Me - diagnosed with hashimoto thyroiditis in 1996, lyme and parsonage turner syndrome in 2010, mthfr mutation in 2013
dd10 and dd11 - diagnosed with sensory processing disorder in 2006, gluten intolerance in 2007, pandas in 2008, lyme in 2010, mthfr mutation in 2013
Posted 24 October 2009 - 04:27 PM
he used to drive me crazy with tying shoes, I had to tie it every morning for him til about two years ago and it had to be very "TIGHT" said he.
Now its his hair that's an issue, its a longer style and he has unruly wavy hair, so it freaks him out every morning, all I hear is groaning and shrieking. if I try to inervene, LOOK OUT!, LOL.
He always takes a long time in the shower, doesn't hurry up and just soap up, its a long drawn out affair no matter how many times I prompt him, so yea, I have taken to two times per week so I don't have to waste alot of time on this along with the homework and everything else he has "time management" problems with.
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