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New eBook: Your Child Has Changed; Should You Consider PANDAS?


Have you seen the ACN Latitudes PANDAS eBookOur helpful book is a 37-page primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need. Learn more

 


Dr William Walsh Autism OCD PANDAS Depression and Methylation Article




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Helpful Threads & Links for PANDAS


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18 replies to this topic

#1 chemar

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Posted 07 October 2008 - 10:35 AM

Hi to all of our members smile.gif

this thread is primarily for posting links to important topics here at Latitudes/ACN, whether link to a thread (copy and paste the URL in your browsers address and then paste here) or link to a specific post within any thread (if u look top right of the post there is a number eg #1...just click that and the post is brought up so u can copy and paste that URL)

Any links for *other* sites, where you feel they would be beneficial to the members, are welcome, but it would be a good idea to really limit those, so that what is truly clear INFO 101 threads by our own members are grouped here, allowing all members, and especially newcomers, to be able to easily find them. We also have to be careful of the perception of "endorsing" research, products, physicians etc. If in doubt as to whether a link here is suitable, just PM me and we will check it for you

What we want to do is try to only use this thread to minimize confusion and provide a comprehensive database of info that has primarily been gathered here for anyone searching for answers

Please NO DISCUSSION on this thread. Feel free to start a new thread below on any topic here for discussion

thanks for your help in putting this valuable resource together smile.gif


When life brings you to your knees....you're in a good position to pray!

click here for: The Treatments that have Helped My Son

click here for the Helpful Threads on Tourette/Tics


* Focus on the light at the end of the tunnel.*



#2 chemar

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Posted 20 October 2008 - 11:48 AM

info from Ronnas on strep antibody titers

http://www.latitudes...?showtopic=1053

updated info from Buster on ASO titers
http://www.latitudes...?showtopic=3756

When life brings you to your knees....you're in a good position to pray!

click here for: The Treatments that have Helped My Son

click here for the Helpful Threads on Tourette/Tics


* Focus on the light at the end of the tunnel.*


#3 chemar

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Posted 20 October 2008 - 11:49 AM

some research info gathered by Buster to provide to doubting doctors

http://www.latitudes...?showtopic=3911

Buster's link to PANDAS summary article
http://www.latitudes...?showtopic=3980

When life brings you to your knees....you're in a good position to pray!

click here for: The Treatments that have Helped My Son

click here for the Helpful Threads on Tourette/Tics


* Focus on the light at the end of the tunnel.*


#4 buster

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Posted 16 January 2009 - 10:59 PM

Some information on ASO and AntiDNAseB titers

An intro to ASO and AntiDNAse B: http://www.latitudes...st=0#entry29305

Some followup comments regarding "what's normal"
http://www.latitudes...art=#entry29305

#5 t_mom

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Posted 21 July 2009 - 12:36 PM

Doctors we have seen who helped with PANDAS.
This is a parent listing of doctors who helped--please add to this list.

This is a list by parents, for our own collection of who-we-have-seen that helped us, and does not indicate any type of endorsement of these doctors by ACN/Latitudes,or by the parents who are posting here. Rather, it is a reflection of our experience along the way-

http://www.latitudes...?showtopic=5023

#6 buster

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Posted 17 August 2009 - 03:13 PM

Brief history of PANDAS research from 1976 research to 2009:

http://www.latitudes...?...ost&p=36300

Regards,

Buster

#7 buster

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Posted 04 December 2009 - 12:07 AM

Brief explanation of PANDAS -- signs, symptoms, treatment, and research

http://www.latitudes...?showtopic=6265

#8 buster

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Posted 06 December 2009 - 03:34 AM

Frequently asked questions

http://www.latitudes...?showtopic=6266

#9 buster

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Posted 22 January 2010 - 01:28 AM

A basic flowchart of how some of the cases on this board have been diagnosed/treated.

http://www.latitudes...?showtopic=6688

Buster

#10 chemar

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Posted 04 February 2010 - 11:32 AM

just wanted to also link the book "Natural treatments for Tics and Tourette's : A Patient and Family Guide" by our admin, Sheila Rogers

there is some info re PANDAS in it, ...but it may also prove helpful to PANDAS parents because of all the other info on symptoms, diet and treatments that is "crossover" re Tic Disorders, Tourette and PANDAS
http://www.latitudes.org/book.html

to subscribe to Latitudes Online Magazine
http://www.latitudes...1/curissue.html

When life brings you to your knees....you're in a good position to pray!

click here for: The Treatments that have Helped My Son

click here for the Helpful Threads on Tourette/Tics


* Focus on the light at the end of the tunnel.*


#11 buster

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Posted 28 May 2010 - 06:29 PM

Information on how IVIG might work

http://www.latitudes...?showtopic=7855

#12 Stephanie2

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Posted 13 July 2010 - 10:58 AM

The following link is for the newly formed PANDASresourcenetwork.org. This website has information for parents and people working in the medical community, as well as researchers. There are several top PANDAS health care practitioners and researchers affilliated with this site. Keep checking back, as there are plans to renovate and expand this website in the near future. Also, you can become a member of this organization so that we can contact you in the future. I have recently started volunteering for this organization and we are looking for more volunteers!

PANDASresourcenetwork.org

Edited by Stephanie2, 13 July 2010 - 11:06 AM.

Stephanie
Holistic Healthcare Consultant, specializing in pediatric illness


Currently training to become a Homeopath.

Two boys with formerly severe PANDAS/ASD. Both fully recovered with homeopathic remedies and a handful of supplements.

#13 jag10

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Posted 13 July 2010 - 04:16 PM

Voice America Interviews

Autism One; A Conversation of Hope

Hour long radio interviews with PANDAS experts and parents of their patients

Dr. Kovacevic:

http://www.voiceamer....aspx?aid=43934


Dr. Latimer and Laura Methos:

http://www.voiceamer....aspx?aid=44414


Dr. Trifiletti and Lynn Johnson:

http://www.voiceamer....aspx?aid=44551

#14 chemar

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Posted 03 November 2010 - 02:20 PM

thread with links to PANDAS info to take in for I.E.P at school
http://www.latitudes...showtopic=10744

When life brings you to your knees....you're in a good position to pray!

click here for: The Treatments that have Helped My Son

click here for the Helpful Threads on Tourette/Tics


* Focus on the light at the end of the tunnel.*


#15 vickie

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Posted 17 May 2011 - 03:46 PM

A very useful website/organization...

PANDAS Network
http://www.pandasnetwork.org

PANDAS Network is also on facebook
http://www.facebook.com/pandasnetwork




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