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Mononucleosis and Bipolar Disorder

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4 replies to this topic

#1 sagepaul



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Posted 27 September 2013 - 10:01 AM

My son had BP disorder and was diagnosed with Mono 6 weeks ago.  While the acute symptoms have lessened, he is having some sort of delusions.  Mainly about events that didn't happen in school...like fabricated stories and he has real emotional reactions to them.  His BP come with psychotic features.  I'm thinking the Mono has exacerbated those features.


Anyone else out there with neuropsychiatric reactions to Mono?  Thanks!!!

#2 nicklemama


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Posted 27 September 2013 - 01:48 PM

How old is your son and how old was he when he was diagnosed BP? You'll have to excuse me but I'm going to say it outright, I am very suspicious of early onset bipolar diagnoses. My son was thought to have bipolar at age 6(started at age 5) and it turned out he has PANS instead. Treatment for PANS has resolved all of the behaviors that were attributed to BP. There are many of us here on this board with similar stories.
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DS11, dx 2010 PANDAS, 1.5yrs after first symptoms
IVIG #1- May 2011, IVIG #2- Nov 2012
Ehrlichia, anaplasma dx Mar 2013
Lyme dx 2014, bartonella 2015

#3 rowingmom


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Posted 27 September 2013 - 02:12 PM

Although we haven't delt with mono, our daughter's PANS symptoms were caused by a lyme / bartonella infection.  We would see flares, often dramatic, to other infections, both bacterial (as in strep) and viral (as in cold or flu).  Treating bacteria (strep) with abx brought some relief, but symptoms would always return.  It wasn't until we treated bartonella agressively that we saw this infection / flare cycle resolve.  She no longer responds to infections with PANS/PANDAS symptoms   

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DD15 - Born 2001 with light/sound/touch sensitivity. Loss of speech/fine motor ability 2 weeks after 15 month MMR vaccination.
2004 - Dx ADHD, SPD (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.
2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.
2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.
Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, extreme fatigue, nightly fever. 
June 2011 - Igenex PCR positive bartonella, Negative ELISA, Negative lyme (IND IgM kDa 41; IND IgG kDa 39, 34.  kDa 41++). CD57 18.  Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80.  CD57 16. 

April 2013 - Weaned from abx treatment at 80% improvement.  Continued with Full Buhner bartonella herbal protocol, Terry Wahls/PerfectHealthDiet gf/cf/sf diet.  Minimizing EMF exposure.

Sept 2013 - CD57 45.  

Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved.  No flares with viral or other infections.  Herxing remains with changes in herbal protocols.

Nov 2013 - Clinical babesia diagnosis.  Improvement to 98% with addition of Buhner herbal protozoan treatment.  

Dec 2013 - ANA titers negative.  PANS symptoms resolved.  Regular classroom requiring no accommodations.  B+/A student.

Mar 2014 - Continued improvement in cognitive/executive function with increased dosages of cryptolepis/sida/alchornea (CSA) tincture.

Sept 2014 - Continued improvement with the addition of red root.  Resolution of EMF sensitivities with low dose cilantro tincture and diatomaceous earth.  99%

Sept 2015 - Present - complete resolution of lingering ticcing symptoms with removal of PUFA supplementation (CLO, hemp oil, fish oil etc).  100%          

DS20 - Born 1996. No unusual symptoms.

#4 bhenry



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Posted 27 September 2013 - 04:51 PM

My dd14 presents like she has bipolar when she is flaring. It used to be continuous until we realized the symptoms disapeared and she became very mellow while doing prednisone bursts. She has a PANS diagnosis. So, when we see her becomming manic she gets a predisone burst. We are waiting for IVIG approval because of the dangers of constantly taking prednisone.

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#5 joybop


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Posted 28 September 2013 - 09:53 AM

Just be careful to make sure no doctor puts the BP diagnosis on their chart. First, even though these kids may have features of BP during flares (I know my child does but then is calm and sweet as a peach when well). I don't believe that your average BP pt would get better with the same treatments. The reason I caution you is bc at least the way things are right now, your child would never be able to get life insurance with that diagnosis bc if high risk if suicide. This is something that a pesky insurance company has ways of digging out, even if you didn't sign a release for that dr to be questioned. Often pcps get the notes and put them in your charts. Once you sign a release that office is required full disclosure. I know this bc I work in a drs office so please be weary of that diagnosis.

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