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Endoscopy-colonoscopy


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#1 Guest_Ada_*

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Posted 11 March 2003 - 12:21 AM

Dear Dr. McCandless:
This forum is really a blessing. Thank you for this opportunity. If I recruit a group of doctors, would you come to New York? Have you referred any of your children to a gastroenterologist for an endoscopy/colonospy? If so, what where the general findings upon examination and biopsy? Any additional treatments? Any major progress?
I recently read an abstract from The Journal of Molecular Psychiatry that referred to autoimmune autistic enterocolitis as a possible subtype of autism, possibly responsive to medical interventions? What do you know about this? Does this treatment parallel that of Crohns and Ulcerative Colitis, for example? Azulfidine? Steroids? Thank You. You are amazing!!!


#2 dr_mccandless

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Posted 11 March 2003 - 01:54 AM

Dear Ada: I have never referred a patient to a gastroenterologist. However, I have treated some children after their parents took the mainstream route and got them scoped and basically found nothing, but the child still had all the problems. Often when an ASD child is taken to a pediatrician with persistent gut problems, a recommendation is made for scoping by a g.i. specialist, and if inflammation is discovered, medications are prescribed such as you list, including steroids, anti-inflammatories, antibiotics, etc. Sometimes this may happen without the child ever being evaluated for long-standing yeast or clostridia infections before the scope. Sometimes these treatments help somewhat and rarely a lot, and often not at all. There may be some children who require such drastic and invasive treatment, but I personally have not run into them. Perhaps it is simply that those parents who are pursuing a mainstream approach do not look up DAN! doctors, or maybe they can't find one.
Dr. Andrew Wakefield, whom I admire tremendously, was the discoverer/describer of a sub-type of autism now sometimes referred to as autoimmune autistic enterocolitis. He found nodular lymphoid hyperplasia in a number of autistic children he scoped where biopsies revealed the vaccine strain of measles by independent research labs. It caused a furor in England where he worked and eventually cost him his job as a research gastroenterologist because of the denial there as here in the U.S. that vaccines could in any way be contributory to the raging epidemic we endure now. However, his work has been borne out by Buie (at Harvard) and Krigsman, two eminent gastroenterologists. Studies have been done to try to negate any possibility that MMR could cause autism, and these studies in my opinion are flawed, looking at the wrong thing, and sometimes have funding connections with pharmaceutical firms that make the vaccines or contributed to the studies leading to their creation.
Since 1991 to late 2001 all newborns were mandated Hepatitis B vaccine at birth, and had injected into their immature tiny little bodies a wallop of thimerosal (49.7% ethylmercury) used as a preservative in these vaccines, giving our kids an immediate injury to the gut (as the mercury was excreted) and the immune system (mercury is a severe neurotoxin). The immune impairment in susceptible children led to multiple ear infections, leading to multiple courses of antibiotics, which further injured the gut and immune system. By the time they were given the triple live virus (MMR) their impaired immune systems were unable to bear this further blow to their already injured immune systems and then began the descent into the abyss of their autism often within hours, days or weeks of this triple jab. A really decent study would have to take many things into account, such as the mother's gestational issues and health condition, ability to breast feed, presence of early colic, etc. etc. and for some reason these studies are not forthcoming.
I believe these times will go down as a black period in American medicine when the truth is finally revealed as to what our governing health agencies have propagated, then covered up and denied. While hundreds of thousands of children who could be healed or at least made much better by proper evaluation and treatment are not able to procure this treatment, or even know it exists, most of the big money for research in autism goes into genetics, which even if they ever do find anything will not help this generation of children who have been injured by the health system their parents trusted. I hope my rant hasn't confused you even more if you are considering endoscopy for your child; each child is a unique universe unto him/herself and the care must also be unique to that child's particular needs. Jaquelyn
Jaquelyn McCandless, MD
Author, Children with Starving Brains

#3 Guest_Ada_*

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Posted 11 March 2003 - 02:29 AM

Dear Dr. McCandless:
I love your long answers! What exacly is nodular lymphoid hyperplasia in the intestinal tract? Will this respond to IVIG treatment? Chelation?Could this be the result of viral and mercury injury?
Any problems with the latest addition Prevnar vaccine? My son experienced limping, drooling, screeching, crossed eyes, and terribly red and swollen ears and penis post this vaccination. This was treated with Benadryl!!!
In your opinion, has any particular treatment modality precipitated speech the most? Why are some children mute,others apraxic, and many echolalic? Any ideas on this diversity in language impaiment? Thanks again.

PS I hope to visit California and meet two amazing women-you and Soma (Tito's mother)

#4 Guest_Maddalena_*

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Posted 11 March 2003 - 07:14 PM

Dr McCandless,
Should you ever find yourself in England by some chance please do get in touch with AiA of which I am a member.
www.autismmedical.com
The primary Bio-Medical Autism Charity and support group in the UK.
.....for the above response and critical appreciation of our difficulties I don't think I 'd be amiss in saying on the behalf of a substantial part of our membership....I owe you dinner :D

Hugs
Maddalena :D

#5 dr_mccandless

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Posted 12 March 2003 - 02:49 AM

Dear Maddalena: I will surely take you up on that offer if I ever get to the UK! Thanks! Jaquelyn

Dear Ada: Nodular lympoid hyperplasia is the condition of swollen infected lymph nodes in the gut, causing many distressful symptoms of pain, bloating, diarrhea, constipation, gas, etc. etc. Dr. Wakefield, an impeccable scientist and a beautiful human being besides, found these enlarged nodes infiltrated with measles virus, NOT wild measles, but the VACCINE derived virus. This has been verified by now at least 3 emminent gastroenterologists, yet it is still vociferously denied by our governing agencies. IVIG is basically considered the primary treatment for this, as the anti-virals that would defeat it are quite toxic and not for general use. Most of the kids who have this are also mercury toxic as well as immune-impaired, so chelation, immune-enhancing nutrients, vitamin/mineral balancing, removal of toxins including wheat, milk, and other pathogen encouraging substances are all part of the treatment. All vaccines are an insult to the immune system and must be weighed carefully as to their usefulness. Please read Dr. Stephanie Cave's book on immunizations. Jaquelyn
Jaquelyn McCandless, MD
Author, Children with Starving Brains

#6 Guest_Ada_*

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Posted 12 March 2003 - 03:00 AM

Dear Dr. McCandless: Will this IVIG tx have to be injectable? Will the PO form help. Where can you get this oral form anyway? A million thanks!

#7 dr_mccandless

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Posted 12 March 2003 - 03:19 AM

Dear Ada: IV means intravenous, definitely injected. Oral immunoglobulin is made from the intravenous powder, and is a new use of an established treatment, not paid by insurance, very expensive, and must be physician prescribed and compounded by a pharmacist. Both the oral and the IV are derived from pooled human blood; they work wondrously in some children and not at all in others, like all of our other treatments for these endlessly challenging and fascinating children. Jaquelyn
Jaquelyn McCandless, MD
Author, Children with Starving Brains

#8 Guest_Ada_*

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Posted 12 March 2003 - 10:23 AM

Dear Dr. McCandless: Sorry, I did not phrase the above question properly.
I understand that the oral form of Immunoglobulin is less expensive than the injectable (though not cheap at all). In terms of treating this nodular lymphoid hyperplasia, will the oral form be effective? or should we go all the way with the IV? Thanks again! Ada

#9 dr_mccandless

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Posted 12 March 2003 - 12:05 PM

Dear Ada: We have just started using the oral form of immunoglobulin, so don't have any real statistics to quote yet. Anecdotally it seems like IV: excellent response in some kids, particularly the young ones with persistent diarrhea. Some, as always, not much response. In a group of older kids (average age 7) I found benefit in most, and several parents were certain the oral immunoglobulin turned their kids around. However, I was doing many other things, so can't be certain - most probably the combination of all my machinations! Jaquelyn
Jaquelyn McCandless, MD
Author, Children with Starving Brains




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