Can PANDAS run in families?
Posted 07 July 2012 - 06:59 PM
Just curious if PANDAS is common among siblings.....
Posted 07 July 2012 - 07:21 PM
Posted 07 July 2012 - 07:38 PM
As with your ds, my dd is not as clear-cut as the severely affected child, but I'll trust the expert to tell me how to proceed. I wouldn't give it another thought--set up an appt for your ds.
DS15 Happy and healthy!
DD12 dx'd PANDAS in 2012, 9 years after first symptoms appeared
Posted 07 July 2012 - 11:05 PM
Posted 08 July 2012 - 04:15 AM
We had one sudden (overnight) onset, another sudden onset 18 months later and the third developed vocal tics a few months after that. OCD and fears came a few months after the tic-only onset.
These three are all treated by Dr L, ivig, steroids, abx and pex & two are in ERP therapy and doing much better these days!
The fourth is a little less clearcut, though much better post steroids. She is only 4, so we are watching closely.
When I first heard of a family with 2 kids with this "rare" disease, i will admit I was skeptical. When my second PANDAS child developed sudden onset symptoms- I truly did not believe lightening could strike twice.
You are in good hands with Dr L.
Posted 08 July 2012 - 04:16 AM
My daughter was dx last year, but suspected for a while prior. Initially a mild case and all symptoms would resolve with a standard dose of abx. She took a bad turn in February, and has gotten worse with each infection since...but she's still not even close to being on the same level as my son.
Mom of an exceptional 6 y/o son and 7 y/o daughter - BOTH with PANDAS.
Posted 08 July 2012 - 06:56 AM
Edited by 3boysmom, 08 July 2012 - 07:42 AM.
Posted 08 July 2012 - 09:46 AM
Posted 08 July 2012 - 10:59 AM
I think there was a discussion awhile back on this forum about this, but I would love to take a poll:
Of those with PANDAS kids, how many moms have autoimmune issues themselves?
I myself (DS14 with PANDAS) have had autoimmune symptoms for years - was even worked up for Lupus at one point. Never had a a formal autoimmune dx until last year when I was dx with Hashimoto's Thyroiditis.
Would be interested to hear of other's experiences.
DS16 dx with PANDAS/Lyme & Co. at age 13 symptomatic since age 2; originally dx with Asperger's, OCD, Anxiety, PTSD
DD14 dx with Lyme, Babesia, Bartonella at age 11, symptomatic from birth
Mom & Dad with various symptoms for 20 years; both M & D being treated for Lyme & Co.
Also addressing MTHFR, diet (GF/CF/GMO-free or Organic),
Posted 08 July 2012 - 11:23 AM
Posted 08 July 2012 - 02:19 PM
Posted 08 July 2012 - 02:55 PM
DS5 dx'd 2009 1 year after first symptoms also PITANDS
Posted 08 July 2012 - 03:01 PM
DD: Possible PANDAS, Epilepsy (Autoimmune variety?)
DH brother: RF
My mother: Scarlet fever, frequent strep throughout life
My sister's DD: Crohn's
Posted 08 July 2012 - 03:28 PM
knows what else
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