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New eBook: Your Child Has Changed; Should You Consider PANDAS?


Have you seen the ACN Latitudes PANDAS eBookOur helpful book is a 37-page primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need. Learn more

 




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Tonsillectomy


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20 replies to this topic

#16 bulldog24

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Posted 26 April 2012 - 02:58 PM

And I say dinner and or drinks ;)


#17 bulldog24

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Posted 26 April 2012 - 03:03 PM

Or many drinks lol!!!!


I made a seperate thread so folks will see.

I cant do daytime evening ok?????

#18 airial95

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Posted 27 April 2012 - 04:59 AM

We had tremendous sucess with the T&A in November for my severe PANDAS son - we were on Cefdinir right up until the surgery - got IV abx during the procedure and were on Augmentin post-op. He came out of surgery 100%. He developed 1 new tic 2 weeks post op when we tried to lower the Augmentin dose (immediately brought it back up).

Unfortunately, about 6-7 weeks post-op he contracted strep again, and has had it 4 positive cultures since the first of the year.

While his recovery was short lived - I would ABSOLUTELY do it again in a heartbeat - it helped us remember what "normal" was for our son - something we hadn't seen in over 2 years!

Mom of an exceptional 6 y/o son and 8 y/o daughter - BOTH with PANDAS.


#19 HanHan

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Posted 27 April 2012 - 05:50 AM

My son just had his T & A three weeks ago. He went back to school a week later. Luckily my surgeon is knowledgeable abour pandas and had my son on iv antibiotics during surgery and augmentin after surgery. My son is now on zithromax three times a week for strep prevention. By the way 2 days after surgery his tics were gone, the surgeon thinks the strep was hiding in his adenoids. In my opinion if your child is having symptoms of pandas/ pans and still have their tonsils and adenoids I would seriously consider this surgery.


Are you concerned about him getting strep while at school? This is my biggest fear. We want to have them done now. We have a May10th appoint. but If she goes back after one week and has 4 weeks left of school she could get exposed. This why we are debating holding off until June although we really want some relief now.

#20 airial95

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Posted 27 April 2012 - 06:02 AM

Our son went back to school after a week and didn't get re-infected until 6 weeks post op when he was taken off the Augmentin.

Mom of an exceptional 6 y/o son and 8 y/o daughter - BOTH with PANDAS.


#21 HanHan

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Posted 07 May 2012 - 06:33 AM

My daughter started clindamycin 6 days ago to have 10 days before her tonsillectomy. She broke out in a rash all over her back yesterday. We are thinking it might be the clindamycin. Which means she can't have that now for her IV abx during surgery. I was curious what type of iv abx your children had during surgery. Thank you.




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