Posted 25 April 2012 - 04:32 PM
I just thought of one more question. Did your kids have intravenous abx. during the surgery? If not, how was the outcome? thanks!
Posted 25 April 2012 - 06:19 PM
Posted 26 April 2012 - 01:55 AM
But, in answer to your question. It was great to have the t & a removed but only for 9 months (but the were a WONDERFUL 9 months).
Hope this helps.
Posted 26 April 2012 - 04:38 AM
Posted 26 April 2012 - 04:55 AM
It is a blessing and a curse. Those nine months were great but I lived in fear that it would come back which it did eventually. I guess it does solidify Pans in my mind though. My pediatrician, after it came back,said it most not be pAndas since she didn't have strep. We've since moved on to a different doctor. I feel like I should send copies of all the latest reaearch that shows it isn't just from strep. Doubt she'd listen though. Some people can't stand to be proved wrong.
Ptcgirl, I'm really sorry to hear that. How devastating to have your dd back only to fall back like that. We had adenoids removed and tubes in ears but my sons doc kept his tonsils. This was way back before we ever knew I pandas, but he was displaying behaviors at that time. He did well for about a ea and then was gettin sick all the time again.
Posted 26 April 2012 - 05:13 AM
Even if I can keep one family from gettin is missed the way I was over the years from each of these docs it will be worth it!
Posted 26 April 2012 - 05:14 AM
Posted 26 April 2012 - 05:39 AM
Posted 26 April 2012 - 05:47 AM
my dd10 had t&A in nov Out 2 weeks. back to school. Got strep 6 weeks later.
Did her pandas symptoms go away for those 8 weeks before she got strep and did they come back when she got the strep? I am really bummed we are not meeting again until the 15th. I was looking forward to the meeting I thought was going to be on the 23rd.
Posted 26 April 2012 - 11:41 AM
Good idea to get iv abx and stay on oral abx after. Good luck.
Two boys with PANDAS sudden onset 3 weeks apart in 10/2010- DS10 and DS8.
Posted 26 April 2012 - 02:20 PM
And did not give abx.
if i had to do over i woud have gone elsewhere and demanded these things.
Recovery was a bit rougher than I thought it would be. She needed every day. One day was ok next severe pain.
Get plenty of pain meds.
Posted 26 April 2012 - 02:22 PM
Posted 26 April 2012 - 02:51 PM
Posted 26 April 2012 - 02:53 PM
I was thinking though we dont need a schedued meeting. We pandas folks could get together whenever. We could just go out to dinner or something
I was thinking the same thing. I was going to mention that in my last post. We could meet somewhere for a drink at night or a coffee during the day just to talk. Let's do it next week.
Also, could you let me know who you had for and ENT. I am had one but changed to another bec. he had earlier appointments but I am questioning whether to go to him or not.
Posted 26 April 2012 - 02:58 PM
Our ent was dr. Shu
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