Posted 24 April 2012 - 08:13 PM
Posted 25 April 2012 - 03:12 AM
Doesn't sound silly at all, I know exactly what you mean - these things that sound like minor details, to anyone who doesn't know the story...
Edited by Wombat140, 25 April 2012 - 03:12 AM.
Born 1990. Always had slight Asperger's traits but got along fine. Severe OCD struck almost overnight in 2003. Varied randomly from month to month since then, almost gone once or twice, but never completely. Very bad indeed since spring 2012 and shows no signs of improving.
Symptoms: all sorts of things (written words, smells, things people say) mysteriously "will not do" and require a compulsion to be done before I can go on. No obsessions - in that way, and in physical nature, the rituals are almost like tics except that they're always a response to something particular. Extreme sensitivity to particular sounds, although that comes and goes over months.
August 2012: wondered if it might be PANS. Finally managed to locate PANS-literate doctor and tried Azithromycin, co-amoxiclav (Augmentin) and tinidazole, but to no clear effect. No tests done about that up till now.
Jul 2013-Aug 2014: Treatment by classical homoeopath. Definite improvements at times but they didn't last, &amp; sometimes things got noticeably worse.
Oct 2014-Apr 2015: Treatment by different homoeopath using CEASE methods. Dosed (I now think) persistently too fast, adding more doses while I was actually still in full aggravation from last one - result, got steadily worse.
Jul 2015: Genetic results showed CBS +/- in 2 places, MTHFR C677T +/-, MTRR A66G +/-, MTRR A664A +/-, MAO-A +/+, COMT V158M +/+, COMT H62H +/+, VDR Taq +/-, VDR Bsm +/-. Tried CBS diet protocol and various supplements with baffling results. Currently not on any special diet or supplements except calcium, magnesium and iron.
Posted 25 April 2012 - 03:42 PM
That is great!!!!! I remember when my son all of a sudden would not let anyone see his chest when he would swim. There would be no swimming without a swim shirt. We also went through the foot covered thing too . His feet were never bare unless immediate family was only in the house (don't ask). It broke our hearts. Then after he took prednisone for a few days he decided on his own that it was okay to be w/out a swim shirt. It was crazy, but I can't remember the last time I was so happy. Hurray for you and your son!!!!
I posted recently that dd has not worn jeans in over a year. Well my typical " it would be a lot easier to pick out an outfit if you could wear a pair of jeans". I went throught this with ds for over a year when he was 7-8. So seeing this in her broke my heart. She didn't like the felling and would just sit in front of her closet and cry. We did leggings and skirts for over a year. During this time I would have her pick her own clothes. I would mention the jeans issue every one in awhile. I knew ds got past it and was praying that she would. So Sunday morning I mentioned jeggings and she actually wore them. At the end of the day she said they didn't bother her and was happy. Monday morning I ask her to go get dressed and she comes out with a pair of jeans on and asking if they are floods. I was so amazed!! They were close to floods but i didn't care and she went to school. I worried on how she would feel during school but I think it went ok! Seeing the look on her face that night telling me that she did it and it didnt bother her was awesome! I know this may sound silly but my dd wore jeans!!!!
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