Posted 24 April 2012 - 08:13 PM
Posted 25 April 2012 - 03:12 AM
Doesn't sound silly at all, I know exactly what you mean - these things that sound like minor details, to anyone who doesn't know the story...
Edited by Wombat140, 25 April 2012 - 03:12 AM.
Symptoms: all sorts of things (written words, smells, things people say) mysteriously "will not do" and require a compulsion to be done before I can go on. No obsessions - in that way, and in physical nature, the rituals are almost like tics except that they're always a response to something particular. Extreme sensitivity to particular sounds, although that comes and goes over months.
August 2012: wondered if it might be PANS. Finally managed to locate PANS-literate doctor and tried Azithromycin, co-amoxiclav (Augmentin) and tinidazole, but to no clear effect. No tests done about that up till now.
Jul 2013-Aug 2014: Treatment by classical homoeopath. Definite improvements at times but they didn't last, &amp; sometimes things got noticeably worse.
Oct 2014-Apr 2015: Treatment by different homoeopath using CEASE methods. Dosed (I now think) persistently too fast, adding more doses while I was actually still in full aggravation from last one - result, got steadily worse.
Jul 2015: Genetic results showed CBS +/- in 2 places, MTHFR C677T +/-, MTRR A66G +/-, MTRR A664A +/-, MAO-A +/+, COMT V158M +/+, COMT H62H +/+, VDR Taq +/-, VDR Bsm +/-. Tried various supplements with baffling results. Currently doing CBS diet protocol, 12.5 mg niacin, 1 mg copper.
Posted 25 April 2012 - 03:42 PM
That is great!!!!! I remember when my son all of a sudden would not let anyone see his chest when he would swim. There would be no swimming without a swim shirt. We also went through the foot covered thing too . His feet were never bare unless immediate family was only in the house (don't ask). It broke our hearts. Then after he took prednisone for a few days he decided on his own that it was okay to be w/out a swim shirt. It was crazy, but I can't remember the last time I was so happy. Hurray for you and your son!!!!
I posted recently that dd has not worn jeans in over a year. Well my typical " it would be a lot easier to pick out an outfit if you could wear a pair of jeans". I went throught this with ds for over a year when he was 7-8. So seeing this in her broke my heart. She didn't like the felling and would just sit in front of her closet and cry. We did leggings and skirts for over a year. During this time I would have her pick her own clothes. I would mention the jeans issue every one in awhile. I knew ds got past it and was praying that she would. So Sunday morning I mentioned jeggings and she actually wore them. At the end of the day she said they didn't bother her and was happy. Monday morning I ask her to go get dressed and she comes out with a pair of jeans on and asking if they are floods. I was so amazed!! They were close to floods but i didn't care and she went to school. I worried on how she would feel during school but I think it went ok! Seeing the look on her face that night telling me that she did it and it didnt bother her was awesome! I know this may sound silly but my dd wore jeans!!!!
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