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New eBook: Your Child Has Changed; Should You Consider PANDAS?


Have you seen the ACN Latitudes PANDAS eBookOur helpful book is a 37-page primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need. Learn more

 


Dr William Walsh Autism OCD PANDAS Depression and Methylation Article




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Psychiatrist Recommendations ME, NH, MA, CT


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6 replies to this topic

#1 momaine

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Posted 22 April 2012 - 05:10 AM

My daughter is being treated for Lyme and PANDAS. We're a year into Lyme treatment and 2 years into PANDAS treatment. Things have improved tremendously but she is SICK AND TIRED of having OCD, even on a reduced level. She is on Celexa per our family doctor and I've never taken her to a psychiatrist mostly based on my own fear of dealing with unbelieving "experts."

Dr. J gave me the name of someone in CT but I can't remember it off the top of my head (anyone know who he recommends so I don't have to call) and its a LONG drive. I'm hoping to find someone closer to home (Maine) who understands lyme and pandas and knows how to treat a child with elevated antineuronal antibodies. MA is significantly closer.

Dr. J also said that kids with elevated antineuronal antibodies sometimes do well with the drug Cymbalta. Has anyone heard of that before? It typically isn't a first line treatment for ocd.

I will drive to CT if neccesary and would like names and a bit of information on anyone you have found useful and understanding of these illnesses. Thank you.


#2 llm

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Posted 22 April 2012 - 06:04 AM

I don't know who Dr J recommends, but I'm guessing it's Sandra Berenbaum http://www.lymefamilies.com/

But I think what you really need is someone versed in ER/P - for that, I'd go to http://www.ocfoundation.org and look for a therapist on their directory who's a BTTI graduate, which means they've been trained in ERP by the IOCDF.

Your other option would be to send an email to the IOCDF and ask them to forward your email to Dr Jenike, who has become very familiar with PANS and its implications in therapy. He may know someone closer who could help.

#3 colleendonny

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Posted 22 April 2012 - 06:11 AM

Hi. I am in MA. We do see a psychologist and I could give you his name if you are interested. My DD's OCD is currently not bad so I am not sure how is he is for all cases.
I do recommend what LLM said. I have an old e-mail from Dr. Jenike that I could forward you when I am on my PC. He had a few recommendations for me. One did take insurance, but only BCBS. And the other is in the Cape and she does not take insurance, but will give you paperwork to submit. They both do ERP.

#4 momaine

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Posted 22 April 2012 - 06:48 AM

We have a good psychologist but I was looking for a psychiatrist to prescribe meds. feeling frustrated.....

#5 minimaxwell

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Posted 22 April 2012 - 07:10 AM

Dr. Dan Geller @ Mass General. He is an expert on OCD and will be doing a PANDAS abx trial soon with Dr. Jenike.
DD18 undiagnosed PANS for 10yrs. Dx 1/12. Had 2 lVlG's 80% better!
DS 14 Happy and healthy but has Celiac.

#6 colleendonny

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Posted 22 April 2012 - 09:02 AM

I meant psychiatrist... Sorry. When I am home I will pm you.

#7 lmkmip67

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Posted 22 April 2012 - 09:19 AM

We don't have a psychiatrist , but are seeing a neurologist at Children's in Waltham. He is starting Ian on prozac, low dose right now. He is up and up on all the PANDAS knowledge (doesn't treat it, but is up on the research, etc). If that sounds like something you would interested in, I can PM you his name, just message me.




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