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New eBook: Your Child Has Changed; Should You Consider PANDAS?

Have you seen the ACN Latitudes PANDAS eBookOur helpful book is a 37-page primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need. Learn more


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#1 eamom


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Posted 08 March 2012 - 10:17 AM

there are a few ads


#2 philamom


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Posted 08 March 2012 - 11:00 AM

Thanks EAMom. A friend of my sister is in the movie. She recently told her story at a senate hearing in Harrisburg of the suffering she endured her entire life due to untreated lyme. So unfair!

Dd 13
Chronic Sinusitis since 18mths of age. Symptoms emerged with sinus infections and into remission with abx.
Severe Episode in March 2006. Dx with PANDAS May 2006. Three other episodes between 2007-2009.
2009- symptoms became chronic.
2010- dx with lyme, bartonella, rmsf. Positive Igenex Lyme. Positive Quest Bartonella and RMSF (igg).
2011- lupus flair, erythema nodosum, Pots, Positive Advanced Lab Culture w/ pic of spirochetes in sample. Positive Igenex

2012- endoscopy & colonoscopy

2013- Still positive for Lyme w/Igenex.. Positive Bartonella w/Quest

2014- Positive Advanced Lab borrelia culture, Positive Igenex, lupus flair, hypothyroidism

2015- Positive for Babesia w/Igenex, hypothyroidism


Treatment: abx & ivig

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