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New eBook: Your Child Has Changed; Should You Consider PANDAS?


Have you seen the ACN Latitudes PANDAS eBookOur helpful book is a 37-page primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need. Learn more

 


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Links to recent research please....


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4 replies to this topic

#1 KelC

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Posted 04 March 2012 - 10:23 PM

Hi, I am wondering if anyone might be able to provide links to recent, well researched papers that discuss the benefits of IVIG for treating children with primarily OCD as opposed to tics. Our Paed.Neurologist here believes that the treatment wont benefit OCD symptoms and I need some credible information to take back to him. Also, I would like our DS to take a prophylactic dose of ABX but doctors wont prescribe more than ten days worth, believing that the abx are only required to treat an active infection. If you know of any recent credible research/paper that discusses the benefits of proph. Abx particularly in relation to their immune modulating effect you please point me in the right direction. Thanks so much!


#2 dcmom

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Posted 05 March 2012 - 04:40 AM

Kel- that is rough, I don't think there are many (if any) publications that recommend longer term abx.

What I would suggest is finding out details about two studies, and presenting this to your doc.

University of South Florida (under Dr Eric Storch and maybe Dr Tanya Murphy) are studying the use of an antibiotic (not sure which) coupled with CBT (therapy) for ocd.

The National Institute of Mental Health (NIMH) in Bethesda, MD (under Dr Sue Swedo) are studying the use of IVIG for PANDAS.

The recent "white paper" by Dr Swedo mentions IVIG, and lays the groundwork for dianosis- and actually highlights ocd as the main symptom.

I would think if you presented these three things to an open minded doc, he would consider short term trials. I believe he could easily contact USF and the NIMH, also.

I am short on time now- but if you have trouble finding this info- let me know and I will locate it.....

Eileen

#3 thenmama

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Posted 05 March 2012 - 04:53 AM

Hi,

I put together some info for an insurance appeal and while it is targeted toward that, maybe there will be something useful for you, too. Here's a link to a thread with some of my citations listed. IVIG citations thread

HTH!

#4 vickie

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Posted 05 March 2012 - 05:23 AM

As for the prophylactic antibiotic, pull up the new NIMH PANDAS page. Look at the very bottom http://intramural.ni...gov/pdn/web.htm

#5 vickie

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Posted 05 March 2012 - 05:26 AM

Oh, also, there is research that shows some abx have neuro-protection. And in Murphy's "Way Forward", she discusses other possible benefits of abx. You can pull the links from this page...

http://pandasnetwork...-2/antibiotics/




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