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My son has trouble regulating the tone, volume and pitch of his voice.

 

Is this common for PANDAS? Thank you for your input.

 

I don't know if it's common but it's definitely a problem for me!

Every now & then something comes out totally high pitched & squeaky & I'm just like "Woah, was that me???" or I don't even realize that I'm practically shouting when spending time with friends until they tell me to quiet down.

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My son has trouble regulating the tone, volume and pitch of his voice.

 

Is this common for PANDAS? Thank you for your input.

If I had a dollar for every time I had to tell my son to stop yelling I would be VERY VERY VERY wealthy :lol:. I think with him it is more than a "boy" thing b/c it varies and is definitely louder at different times.

Brandy

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From a speech therapist's perspective this is very interesting to me. When thinking of other disorders related to the basal gangia & Dopamine, for example Parkinson's Disease, one of the hallmarks & initial symptoms is voice changes-particularly reduced volume. I would love to see how many kids have these voice changes (particularly low volume), although I think it's probably hard to differentiate it from changes in children's voices throughout childhood, which happens as a result of normal changes in the vocal tract as they grow & mature.

 

My daughter asked me a few weeks ago if she sounded like a boy. I thought the question was so odd & asked if someone told her that. She said that they hadn't but that she sounds different. I could not perceive a difference but maybe she's on to something.

 

 

Amy

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Interesting indeed! Our son developed a very raspy, gravelly voice when PANDAS hit. We were never sure if it had something to do with the disorder or was just "pre-puberty" voice changes. Heres' an older thread on this topic:

 

http://www.latitudes.org/forums/index.php?showtopic=5711

 

 

From a speech therapist's perspective this is very interesting to me. When thinking of other disorders related to the basal gangia & Dopamine, for example Parkinson's Disease, one of the hallmarks & initial symptoms is voice changes-particularly reduced volume. I would love to see how many kids have these voice changes (particularly low volume), although I think it's probably hard to differentiate it from changes in children's voices throughout childhood, which happens as a result of normal changes in the vocal tract as they grow & mature.

 

My daughter asked me a few weeks ago if she sounded like a boy. I thought the question was so odd & asked if someone told her that. She said that they hadn't but that she sounds different. I could not perceive a difference but maybe she's on to something.

 

 

Amy

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We have definitely experienced vocal variations while in an exacerbation. The face swells, the voice changes (sometimes it is nearly unrecognizable in its pitch, presentation and cadence). And I continue to be amazed at how she can scream for so long and yet have no sore throat or hoarseness after the screaming event. It is a very physiological event for our dd12.

Mary

from Michigan

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  • 5 months later...

My 8 year old son developed PANDAS during the summer of 2010. He was given a penicillin shot by his pediatrician and has been taking oral penicillin from an infectious disease specialist in New Orleans for four months. A heart murmur was also discovered and we were told that it is typical of PANDAS patients. My son's tics seem better, but his voice has been raspy for two weeks now. Two days ago he became ill with 102 degree fever and a severe sore throat, which could be the cause. I would also like to add that until he started his antibiotic, his voice would fade to very quiet while reading. Within a couple of weeks of being on the penicillin, his volume control improved.

Edited by scorpio1
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What we see when he's ramped up via PANDAS is increased volume. We're constantly having to remind him that we're "right here" and he doesn't have to shout. I think it's the same adrenaline push that the "fight or flight" induces when the PANDAS anxiety is pumped up.

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Ds' voice fluctuation is never consistent. Right now it's better but at times can be very annoying and now he is picking up on the frustrated look on my face and then tries to repeat it in a correct tone. It disappeared after the prednisone burst and IVIG of course.

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Our son is usually very LOUD! Can't seem to regulate the volume. I asked Dr. B about this and he thought it was tied more to being hyperactive during the Pandas episodes.

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