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SHE'S EATING! Omg, SHE'S EATING! ;)


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Happy news and I had to share-- I'm bursting at the seams!!!! Last night dd started eating! 2 pieces of bread, 2 pieces of cake, 2 cookies (even had chocolate chips in them!), a Popsicle, and then a personal sized homemade pizza- ate almost the whole thing!!! This is the most she's eaten since NOVEMBER!!!!!! And she had cake for breakfast this morning, and was asking for more pizza!!!!!!

 

I sure hope this continues. I am so thankful for this victory. It's probably hard for someone who's never experienced this how f@)$&@;king happy someone could be to see someone do something so "simple" as eating!!! I'm ecstatic!

 

Day 12 minocycline.... Coincidence? I think not!!!! Each time she's tried a new abx she's seen improvement at approx 2 weeks, but this is the first time eating has happened!!! I'm sure the CBT has helped (well, maybe, I'm not exactly SURE about that) but I don't think therapy made her suddenly pig out like that. That was too sudden for response to exposure therapy in my opinion. Whatever it is, I'm thankful. And I'll keep doing everything we're doing and hope and pray this progress continues!!!!

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I'm very excited that she has started eating again. Is this the first time she has been on minocycline? From what I have read this is not an antiboitic that is normally used to treat PANDAS. So this is very interesting. Wishing you and your daughter the best and let the HEALING begin. Keep us posted.

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Fingers crossed that it continues! If you can, focus on replacing some lost nutrients that she may be lacking - or see if you can get her to swallow a multivitamin and then let her indulge in anything she wants!

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I don't want to push her too much right now, I'm just happy she's eating! Not as much as she did Sunday night, but she's eaten a little something morning and night so far, and that's huge!!

 

Rachael, this is the first run of minocycline. She's also on azithromiacin and Bactrim, and Clak & drainage tone for detox. We suspect bartonella, and that's the reasoning behind the Mino. And true to her pattern, dd showed improvement at right around 2 weeks of new antibiotic-- although this is the first time eating has happened!!

 

Pr40- I spoke to Dr. L but he's not the one treating her... She sees one of his colleagues for CBT. He knows her Pans doc, and sits on the pandas advisory board with him. I am sitting in the waiting area of his offices right now, in fact! If I see him walk by, I'll share the good news ;)

 

8 months was such a long time to go without her eating willingly.... She's sticking to pizza and choc cake for now and I'm okay with that. Hopefully she'll branch out and be on the road to health. I'm praying that her recovery continues.

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Beerae-

 

Totally agree- any eating now is of great value- forget about worrying about getting healthy foods in, until her eating has stabilized.

 

Our doctor uses mino as the only abx for pandas- it is used for brain inflammation as it crosses the BBB.

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